Broc is currently 7 feet 8 inches. He was diagnosed with Sotos Syndrome also known as cerebral gigantism when he was only 5-years old. The doctors told his mother he would probably not outlive his teenage years, but they were wrong.
The disorder occurs in one in every 15000 people. The doctors have now recanted their earlier prognosis of Broc and are very confident that he will have a life span as the average individual.
”It’s a genetic disorder and there’s nothing that can stop him from growing. I don’t know if he will ever stop.” his mother Darci said.
”I’d say Broc was around 5 ft 2 inches when he was in kindergarten. When he got into middle school he was around 6 ft tall and by high school he was 7 ft tall, he could easily grow six inches in a year.” she added.
While growing so quickly, Brown has a few other health issues. He was born with only one kidney which makes him unable to take painkillers for his back pain that is caused by narrowing of the spinal cord and curvature of his spine. He also has a strain on his heart and learning disabilities.
”It kind of feels like a big tennis racket has gone through my back.” Brown commented.
”I do stuff to stop it hurting and it makes me feel like there’s a needle gone through it, it’s hard to deal with. I just wish the doctors could do something to help my pain.” he added.
Broc is not the only one having difficulties, his mother has back pain due to carrying him around since he was little and half her size.
”When you have a five-year-old who has hurt themselves and they come running at you, you pick them up. I would carry him around when he was half the size of me so I have a lot of back problems.”
Financially, it’s difficult to support Broc’s needs because he is not the ordinary teenager. Clothes and shoes for him are custom made.
One pair of his socks costs around $18 since shoe size 28 and his bed was custom made for about $1000.
Despite the community collecting $10000 to help out the family, it was all exhausted on Broc’s clothes and shoes.
”It didn’t last long, we had a lot of outfits but within a year he was out of them and it was time to do it all again.” Darci said.Recently, Broc and his mother Darci traveled to a thousand miles to Arkansas Children Center to meet with Sotos Syndrome specialist Dr. Bradley Schaefer .
”Broc is easily the tallest man I have ever seen. Unfortunately he will always have to deal with some form of pain but I believe that he will now have a regular life span.” Dr. Bradley Schaefer said.
Broc is very happy about the news and feels blessed.
”It’s the best thing I could have heard, I’m so happy that I will live for a long time.’ he said.
The teen also suffers from ADHD and intermittent explosive disorder which makes his life harder and makes him dangerous when it occurs.
”When he gets mad, he’s mad. It wouldn’t take him two seconds to pop a hole in the wall, it could be very dangerous if he wasn’t on medication and able to be calmed. But overall he is a big softie, his heart is as big as his body.” Darci said.
Broc plans to find a job in the near future to help his mother out and to have some independence.
”I hopefully want to work for a sporting goods store so something like that, a cashier or something. I just want to have my own job.”
His mother is not pushing him into anything he doesn’t want to do and does not mind taking care of him, as long he needs it.
”I just hope he has a good life and is happy with everything he ever does.”
We wish them all good luck. 🙂